{"id":14063,"date":"2021-10-25T22:58:33","date_gmt":"2021-10-25T20:58:33","guid":{"rendered":"https:\/\/szslucnalc.sk\/?p=14063"},"modified":"2021-10-26T18:41:17","modified_gmt":"2021-10-26T16:41:17","slug":"nazreli-sme-do-iviho-sveta","status":"publish","type":"post","link":"https:\/\/szslucnalc.sk\/?p=14063","title":{"rendered":"Nazreli sme do Iviho sveta"},"content":{"rendered":"\n

Boli \u010dasy, ke\u010f museli naplno \u010deli\u0165 krutosti sveta, ktor\u00fd ich vyh\u00e1\u0148al na samotn\u00fd okraj spolo\u010dnosti. Dnes je svet hum\u00e1nnej\u0161\u00ed, ale st\u00e1le sa n\u00e1jdu jedinci, ktor\u00ed im ubli\u017euj\u00fa. Pri tom sta\u010d\u00ed tak m\u00e1lo – spozna\u0165 ich.<\/p>\n\n\n\n

Downov syndr\u00f3m patr\u00ed k\u00a0najbe\u017enej\u0161\u00edm chromozom\u00e1lnym poruch\u00e1m a je naj\u010dastej\u0161\u00ed z\u00a0vroden\u00fdch syndr\u00f3mov. Vyskytuje sa vo v\u0161etk\u00fdch etnick\u00fdch skupin\u00e1ch v\u00a0priemere u\u00a0jedn\u00e9ho zo 700 \u017eivonaroden\u00fdch det\u00ed. V\u00a0priemere sa v\u00a0r\u00e1mci Slovenska narod\u00ed ro\u010dne 30 – 50 det\u00ed s\u00a0Downov\u00fdm syndr\u00f3mom. V\u00a0ka\u017edej bunke maj\u00fa o\u00a0jeden chromoz\u00f3m viac. To ich men\u00ed v\u00a0ka\u017edom oh\u013eade, st\u00e1le v\u0161ak ost\u00e1vaj\u00fa bytos\u0165ami, ktor\u00e9 potrebuj\u00fa i\u00a0rozd\u00e1vaj\u00fa l\u00e1sku. Okt\u00f3ber je vn\u00edman\u00fd ako mesiac povedomia o\u00a0tomto syndr\u00f3me.<\/p>\n\n\n\n

25.okt\u00f3bra sme si v\u0161etci tretiaci pribl\u00ed\u017eili dan\u00fa problematiku asi najlep\u0161\u00edm mo\u017en\u00fdm sp\u00f4sobom. Sp\u00f4sobom, ktor\u00fd pod\u013ea m\u00f4jho n\u00e1zoru zmenil n\u00e1\u0161 poh\u013ead na svet. Uk\u00e1zal n\u00e1m, \u017ee by\u0165 in\u00fd je v poriadku. Nav\u0161t\u00edvila n\u00e1s p. Marcelka \u017ditnakov\u00e1 s jej synom Ivkom, ktor\u00fd m\u00e1 t\u00fato poruchou, no nik by asi nepovedal, \u017ee \u0148ou trp\u00ed. Bolo pre n\u00e1s neskuto\u010dne obohacuj\u00face po\u010d\u00fava\u0165 Marcelkin siln\u00fd pr\u00edbeh, vn\u00edma\u0165 ko\u013eko toho musela zvl\u00e1dnu\u0165 a ved\u013ea nej vidie\u0165 ten kr\u00e1sny v\u00fdsledok jej sna\u017eenia \u2013 jej syna.  Ivko napriek svojej diagn\u00f3ze norm\u00e1lne funguje, vie skoro samostatne existova\u0165, vie si nak\u00fapi\u0165, \u010d\u00edta\u0165, p\u00edsa\u0165, nem\u00e1 probl\u00e9m s upratovan\u00edm, m\u00e1 preh\u013ead o \u0161portovom dian\u00ed i geni\u00e1lne ovl\u00e1da v\u0161etky hlavn\u00e9 mest\u00e1 tejto plan\u00e9ty. O \u010dinnostiach, ktor\u00e9 zvl\u00e1da by sa dalo p\u00edsa\u0165 e\u0161te ve\u013emi dlho\u2026 Porozpr\u00e1val n\u00e1m s humorom o sebe mnoho vec\u00ed, ktor\u00e9 stoja za obdiv a s \u00fasmevom n\u00e1m k tomu dodal: “ Viete, humor je moja v\u00e1\u0161e\u0148.“. S ur\u010ditos\u0165ou m\u00f4\u017eem poveda\u0165, \u017ee pre ka\u017ed\u00e9ho z n\u00e1s by bolo v\u00e1\u0161\u0148ou tr\u00e1vi\u0165 s n\u00edm \u010das a by\u0165 s\u00fa\u010das\u0165ou jeho ka\u017edodenn\u00e9ho \u017eivota.<\/p>\n\n\n\n

\u010eakujeme za t\u00fato pr\u00edle\u017eitos\u0165 pani profesorke Mirke Sekulovej a ve\u013ek\u00e9 \u010fakujeme patr\u00ed aj Marcelke a Ivkovi, ktor\u00ed boli ochotn\u00ed n\u00e1m to\u013eko zo seba odovzda\u0165 a pomas\u00edrova\u0165 t\u00fdm na\u0161e du\u0161e.<\/p>\n\n\n\n

V. Jon\u00e1\u0161ov\u00e1, 3.A<\/p>\n\n\n\n

PS : Ivko p\u00f4sob\u00ed ako mas\u00e9r vo svojom Regenera\u010dnom Ivi centre, kde mu je mama n\u00e1pomocn\u00e1 ako pracovn\u00fd asistent. Viac o nich i o ich slu\u017eb\u00e1ch sa dozviete na – https:\/\/www.ivicentrum.com\/<\/a><\/p>\n\n\n\n

Bli\u017e\u0161ie inform\u00e1cie aj na :<\/p>\n\n\n\n

\nhttps:\/\/downovsyndrom.sk\/v16\/node\/85\n<\/div><\/figure>\n\n\n\n
\nhttps:\/\/blog.sme.sk\/martinasulova\/spolocnost\/mesiac-povedomia-o-downovom-syndrome-co-vsetko-treba-vediet\n<\/div><\/figure>\n\n\n\n